The Global State of the Genetic Counseling Profession

MaryAnn Abacan; Lamia Alsubaie; Kristine Barlow-Stewart; Beppy Caanen; Christophe Cordier; Eliza Courtney; Emeline Davoine; Janice Edwards; Niby J. Elackatt; Kate Gardiner; Yue Guan; Lian-Hua Huang; Charlotta Ingvoldstad Malmgren; Sahil Kejriwal; Hyon J. Kim; Deborah Lambert; Paulina Araceli Lantigua-Cruz; Juliana M. H. Lee; Marianne Lodahl; Åshild Lunde; Shelley Macaulay; Ivan Macciocca; Sonia Margarit; Anna Middleton; Ramona Moldovan; Joanne Ngeow; Alexandra J. Obregon-Tito; Kelly E. Ormond; Milena Paneque; Karen Powell; Kunal Sanghavi; Diana Scotcher; Jenna Scott; Clara Serra Juhé; Shiri Shkedi-Rafid; Tina-Marié Wessels; Sook-Yee Yoon; Catherine Wicklund

doi:10.1038/s41431-018-0252-x

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The Global State of the Genetic Counseling Profession

Journal article

Open access

Peer reviewed

The Global State of the Genetic Counseling Profession

MaryAnn Abacan, Lamia Alsubaie, Kristine Barlow-Stewart, Beppy Caanen, Christophe Cordier, Eliza Courtney, Emeline Davoine, Janice Edwards, Niby J. Elackatt, Kate Gardiner, …

European journal of human genetics : EJHG, Vol.27(2), pp.183-197

01/02/2019

DOI: https://doi.org/10.1038/s41431-018-0252-x

PMID: 30291341

Abstract

Genetic counselling

Genetic services

Review

The profession of genetic counseling (also called genetic counselling in many countries) began nearly 50 years ago in the United States, and has grown internationally in the past 30 years. While there have been many papers describing the profession of genetic counseling in individual countries or regions, data remains incomplete and has been published in diverse journals with limited access. As a result of the 2016 Transnational Alliance of Genetic Counseling (TAGC) conference in Barcelona, Spain, and the 2017 World Congress of Genetic Counselling in the UK, we endeavor to describe as fully as possible the global state of genetic counseling as a profession. We estimate that in 2018 there are nearly 7000 genetic counselors with the profession established or developing in no less than 28 countries.

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Title: The Global State of the Genetic Counseling Profession
Creators - without role: MaryAnn Abacan - Manila, Philippines
Lamia Alsubaie - King Abdulaziz Medical City
Kristine Barlow-Stewart - Northern Sydney Local Health District
Beppy Caanen - Maastricht University Medical Centre
Christophe Cordier - Sophia Genetics
Eliza Courtney - National Cancer Centre Singapore
Emeline Davoine - Lausanne University Hospital (CHUV), Lausanne, Switzerland
Janice Edwards - Genetic Alliance
Niby J. Elackatt - Global Hospitals
Kate Gardiner - LifeLabs Genetics, Toronto, Canada
Yue Guan - Emory University
Lian-Hua Huang - China Medical University
Charlotta Ingvoldstad Malmgren - Karolinska University Hospital
Sahil Kejriwal - Seattle University
Hyon J. Kim - Wrexham University
Deborah Lambert - National Rare Diseases Office, Dublin, Ireland
Paulina Araceli Lantigua-Cruz - Universidad de Ciencias Médicas de la Habana
Juliana M. H. Lee - Kuala Lumpur, Malaysia
Marianne Lodahl - Copenhagen University Hospital
Åshild Lunde - University of Bergen
Shelley Macaulay - National Health Laboratory Service
Ivan Macciocca - Victorian Clinical Genetics Services
Sonia Margarit - Universidad del Desarrollo
Anna Middleton - University of Cambridge
Ramona Moldovan - Babeș-Bolyai University
Joanne Ngeow - National Cancer Centre Singapore
Alexandra J. Obregon-Tito - University of Arkansas for Medical Sciences
Kelly E. Ormond - Stanford University
Milena Paneque - i3S - Instituto de Investigação e Inovação em Saúde, Universidade do Porto
Karen Powell - Cone Health
Kunal Sanghavi - Jackson Laboratory
Diana Scotcher - St Mary's Hospital
Jenna Scott - University of British Columbia
Clara Serra Juhé - Hospital del Mar Research Institute
Shiri Shkedi-Rafid - Hadassah Medical Center
Tina-Marié Wessels - University of Cape Town
Sook-Yee Yoon - National University of Malaysia
Catherine Wicklund - Northwestern University
Publication Details: European journal of human genetics : EJHG, Vol.27(2), pp.183-197
Publisher: Springer International Publishing
Grant note: ;
Identifiers: 9921106708331
Academic Unit: King Abdulaziz University; King Saud Bin Abdulaziz University for Health Sciences
Language: English
Resource Type: Journal article